Traveling With Food Allergies

I was on the internet the other day reading various articles on traveling with food allergies. I love to travel, but it does make it somewhat harder when taking my daughter's allergies into consideration.

I remember one time when we flew to Seattle, Washington for a visit. We were out walking around and it was close to dinner time and we hadn't eaten yet. She was getting hungry, so I stopped by the nearest McDonald's (this is a treat for her because we do not do fast food places). In the middle of our order she noticed that the buns had seeds on them. Where we live they don't have them on the kid's buns, so I assumed it would be the same there. I was wrong. I should have inquired before placing an order. This just goes to show you that just because it is the same "restaurant" they may not prepare their food the same way.

I also read where some people were talking about traveling to different countries and having to deal with food allergies. Sometime ago I was thinking about moving to Scotland for awhile (just the thought of it makes me want to hop on a plane). So I thought to do extensive research on the types of food that they had in restaurants over there.  Most of the places she would be okay to eat in. I also looked into what types of grocery stores they had to offer also. I primarily shop for organic foods, so that would have to be a big option for me. It makes you realize how easy it is for people who don't have to worry about food can just up and go pretty much where they want. But for those who have food allergies or have kids that have them, must take an extra step in order to make sure their lives or their love one's life is safe.

During further reading, I discovered that in some countries it can take up to two months to get an epi pen replaced. It would be terrible to be somewhere and have used the epi pens that you have and not be able to get a replacement for them. I know of one person who traveled to another country and took about 4 epi pens with her family so that they could be covered. Now if you are a neurotic mother like me when it comes to the food that passes your child's mouth, then 9 out of 10 times you probably won't need to use the epi pens, but it is better to be safe than sorry.

Even though my daughter's food allergies aren't as severe as other kids, I still take it seriously and try to protect her as best as I can. I feel that it is highly important for her to be well traveled and will not let her food allergies stop that from happening. I just tend to be extra cautious and take as much food with me, that is safe for her, that they will allow me to carry in our suitcases.

My Child's Attempt With Honey Nut Cheerios

When my daughter was first diagnosed with food allergies she was able to eat Honey Nut Cheerios. It always boggled my mind because it says, 'Honey Nut'. At the time, being new to food allergies, I didn't take the time to figure out what kind of nut it was because it never affected her. Plus I talked to another mother whose daughter had nut allergies and she said her child was able to eat Honey Nut Cheerios also, so, no big deal, right?

Sometime later, I gave my daughter a bowl of the cereal and she said it made her tongue feel funny. I asked her if she was sure. I thought she was fine when it came to this cereal. So I tried a bowl of it myself. I don't know if I was trying to "empathize with her", but it left a metallic taste in my mouth. Just like any mother who is weirded out by stuff, I threw the box out. This prompted me to see just what kind of nut they actually used in the cereal. I know, I know, bad mother. How could you feed your daughter something you haven't fully researched? Well, my daughter never had severe reactions to food like most other kids did and her allergist also told me that peanuts and cashews were the ones I needed to look out for. Not getting much help from her allergist, I realized how serious it really was after doing research on my own.

Now, we jump to the present. I was in the store shopping for cereal when I came across the "new" Honey Nut Cheerio. Well, it was new to me. Apparently they took out the nut and put in almond flavor instead around 2006. I figured we could try it again because the actual nut is no longer in it. So I gave her a bowl and she happily ate it. Halfway through the bowl she stopped eating it and started on her bread. She had a weird expression on her face, so I asked her if the cereal made her feel funny. She said that it did, with a little hesitance. I think she really wanted to finish it, but I didn't let her. This convinced me to pull out her results again and look them over to see what her number had gone down to. It went from a 2.58 (class 2) to a 0.44 (class 1). Now my question is, how is it that when she was listed as a class 2 she could eat the cereal, but now that she has dropped to a class 1, it seems to bother her? Am I the only parent out just doesn't get this whole allergy thing, or are there others?

Mixes from the Heartland Reveiw #2

This is my second review for Mixes from the Heartland. I really enjoyed the food that they sent me and implore everyone to go to their website and try some of their food. It makes mealtime very quick and delicious. And if you have any food allergies it is perfect because they are a facility that is free of wheat, soy, barley, oats, rye, eggs, nuts, and by products (which is listed on the back of their packages).

The last time I posted a review, it was regarding their Beef Skillet Dinner and their Sweet Potato Brownie Mix (which was to die for!!). This week I am going to be reviewing their Italian Bean Soup, Corn-n-Tomato Salsa, Strawberry Dip, and Tex Mex Spaghetti Meal.

Like most of their packages, all the ingredients are inside. I just added some chopped tomatoes and Italian sausage and the meal was good to go. You put it on the stove and boil it for a while and then it is ready to eat. I will be honest, I hate soup, but this one I really liked. I wasn't sure if I was going to, but I did. The variety of beans and the added sausage, makes it a quick meal in one soup.

Their Tex Mex Spaghetti meal was really good. I added the browned beef and tomatoes and mixed everything together for a Texas flare to the spaghetti. It was really good. And everything again came right in the bag. All of the meals that I made produced enough for a family to eat. I was able to actually share most of everything that I made with my sister's family. They said they really enjoyed it also and would buy from Mixes from the Heartland (and none of them have any food allergies). Once again, people probably think that this food might not taste as good because it is allergy free, but it does have flavor to it.

The Corn-n-Tomato Salsa was really good as well. I put the mix in sour cream and made a chip dip with it. It gave a great twist to the plain chip.

If there is something that I think you should try, it would be the Strawberry Dip. I had people asking to take some of it home (not trying to be selfish, but I didn't want them to). This was a major hit in my house. It was amazing!!! All I had to add was some cool whip and cream cheese and it made an incredible dip for fruits. I used strawberries and bananas. It tasted great with both. My niece was eating it plain out of the bowl. That is how good it tasted. I have to say I was surprised by this dip.

Once again I have to say that I really think that this is a company that you should shop through if you have food allergies. It is something that everyone can eat and the person with the allergies will not feel left out because everyone is eating the same thing. So go out and buy some of their products. Their food will be in my cupboards!!

A Child's Food Allergy Poem

I have a food allergy

So what if that’s true.

That doesn’t make me different

I just avoid certain foods.

You may think it’s funny

To taunt and to tease,

But I also have feelings

So stop and back away please.

Just think how you would feel

If denied all these foods,

Especially at birthday parties

Where you can’t have cake or ice cream too.

Each and everyone of us is different

Our allergies are not the same.

For some it could be dairy, nuts, or fish

And for others soy or wheat is to blame.

Whether young or old

I have to remain safe,

Because cross-contamination

Could cause a devastating fate.

So please learn to read all labels

And my arm bracelet too.

Cause 100% safety

Is the best thing for me and for you.

© 2010 Belladona Creations
QE4J2BJFGA37

Unexplainable Hives

I decided to make some oatmeal raisin cookies for my family's luncheon on Saturday. I figured if I made them from scratch my daughter would be able to eat them also. So I pulled out all the ingredients for them and proceeded to create them. Once I was done, I put them in the oven and cooked them. After they cooled off, I gave one to my daughter to try. As usual, she was hesitant to try it. I think she has been told no so many times that when it comes to trying allergy free foods, she thinks problems will still occur.

For some strange reason she went downstairs to eat it. It was a good thing she did because she yelled out that her throat felt funny. I was able to give her something to drink and her throat felt better. I am beginning to believe that her food allergies aren't as life threatening as some other people's children. She doesn't seem to go through all the major symptoms that some other children go through. Don't get me wrong, I still treat them as though they are. You never know when it could change.

After I gave her something to drink, I thought that everything was fine. She went back to playing and it was as though she never had the cookie. I then put her in the tub to give her a bath. While she was in there she told me her legs were itching. I told her, her skin was probably dry. She use to have eczema when she was a baby, so her skin tends to be a little drier. When I took her out and started to put Vaseline on her, I noticed scratch marks on her legs. I asked her what had happened and she said after her throat started to hurt, her legs started to itch. She had little bumps all over her thighs. I told her to try and not scratch as it would put marks on her legs.

Later on in the middle of the night she woke up to tell me her legs were itching her really bad. I turned the light on and examined her legs. She had actual hives on them. I had to look for the topical benadryl to put on her. She stated that it didn't help, but she was able to go back to sleep.

I can't figure out why that happened. It is always hard to tell when it is not directly related to food. There shouldn't have been anything that would have set her off in the cookie. The only thing that I can think of is either the nutmeg or the cinnamon. I don't think she is allergic to either of them, but those were the only seasonings in them that she doesn't usually have. I don't know, maybe she is truly allergic to one of them or maybe she is just having a pseudo allergic reaction to them. Only time will tell.

From Food Allergies to Asthma

I just had a conversation with my daughter's allergist. We were going over how her RAST numbers have gone down and what to look forward to in the future. We decided (more or less me) that we would wait two more years before putting my daughter through a food challenge. I just think it would be better if her numbers were closer to zero.

According to her allergist (I can't speak for all the others), there is a certain trend they follow. This would be kids that she has dealt with that have had lower RAST numbers vs. higher ones. As excited as I was to hear that there was a trend in the numbers going down I become dismayed at what followed. See, my daughter not only has food allergies, she also has outdoor and pet allergies. I never thought that her outdoor allergies could become an issue like her food allergies, but apparently they can. She explained that most of the kids that she has whose RAST numbers fall (food wise), start having to deal with allergens in the nose which leads to asthma. The sad thing is that her outdoor allergen numbers went up quite a bit. This is due to the fact that we are going into spring/summer. So, this year, or over the next two years (before her next test session) I have to watch for her coughing or wheezing while she is running. If that starts up, it is back to the allergist again.

Having to make sure I have her epipens and benadryl with me at all times is something that I have become accustomed to. But now having to think that I may have to include an inhaler with them is very disheartening for me. To think that she may have to carry her epipens and an inhaler to school..... I just pray it doesn't get to that point, especially for a kid who is HIGHLY active and loves being outdoors.

Copyright © 2010 Allergykidmom. All rights reserved

Parsley ~ An Actual Food Allergy

There are so many different types of foods that children or adults can be allergic to. Sometimes I am not sure if my daughter is just not feeling well or if she is really having an allergic reaction. Most of the times her reactions to certain foods is pretty much clear cut, but then there are those times when she just vomits (pardon my words) hours later and has no other reaction with it. Those are times when I am left wondering if it is truly something to be avoided or not.

A while ago we had a big dinner at my parent's house. Everything was "food safe", so my daughter could eat until her heart was content. At least that is what I thought. A new item that was presented was red potatoes with parsely and olive oil. Now looking at that, you wouldn't think that it would affect someone in any way whatsoever. But later that night, she got up out of her bed and told me she felt sick. She then went into the bathroom and plopped herself in front of the toilet. I have been blessed to have a young child who can tell me she is going to be sick and still make it to the bathroom before throwing up. As gross as this may sound, I have been in the habit of checking her vomit to see what has made her sick. This time it was red potatoes and parsely. Wow, who would have thought that would be the thing to make her sick!

Today I decided to look on the internet and see if someone could really be allergic to parsely. Can you believe it, you can. I have always kept her from it after that one incident, but that is just because I tend to get paranoid when she has any type of reaction to food. On Wikipedia I found out that parsley is part of the Birch family. Some of the other foods in the Birch family are: almonds, apples, apricots, avocados, bananas, carrots, celery, cherries, chicory, coriander, fennel, fig, hazelnuts, kiwifruit, nectarines, parsley, parsnips, peaches, pears, peppers, plums, potatoes, prunes, soy, strawberries, wheat, and potentially walnuts. After seeing this I thought that I should have done research on it sooner. She happens to be allergic to almonds, hazelnuts, wheat, and walnuts. It is hard to say what to avoid and what not to avoid. She can eat apples, bananas, carrots, celery, cherries, soy, strawberries and wheat (her number for this is so low she is not affected by it) without a problem. Unfortunately, it is going to have to be a guessing game for me for the rest of her life.

Copyright © 2010 Allergykidmom. All rights reserved

Allergy Test Results

I received good news today from my daughter's allergist. Her test results came back with lower numbers. Now when I say lower, I mean way lower. To most of you this may not seem like a big deal, but for someone who has had to watch what their child ingests for the sake of their life, it's a big deal. I thanked her allergist over and over again. I'm sure she could see the smile on my face by the tone of my voice.

First, we talked about her cashew results. This one was the highest number the last time she was tested. The results showed that it went down from a 28 to a 6. She wanted the number to be a 5 or lower, but this was good news for me. See, I had to deal with her having a reaction to cashew butter and it wasn't easy. She fell asleep (her blood level dropped) and then threw up later. I was happy to hear that it was a 6 even though a 5 would have been better.

Next we talked about her peanut number. Originally, it was a 12 and dropped down to a 6 also. This is good news because peanuts seem to be in everything or cross-contaminated with everything. This shows that within the last 3 years, her numbers dropped in half. Just think what another 3 years could bring.

The last thing we discussed was regarding her having a food challenge. I can't say that I am all that keen on this idea. I would love for her numbers to be a lot lower. I still fear that something could go wrong even though she would take this test in a hospital.

When my daughter got out of school I told her the allergist called and gave me good news. I explained to her that her numbers were lower this time which means she is getting better. I told her she still isn't allowed to have the foods that are listed on her allergy bracelet, but one day she may be able to. With a smile on her face, she looked at me and said, "One day I may be able to take this bracelet off and not have to wear it?" I told her maybe. She jumped up and down with joy.

Even though her numbers are lower, I will still take the same precaution as before. The epipens and the benadryl will continue to go with us everywhere. The avoidance of bakeries, certain restaurants, and potlucks will still stand firm. But the thought that maybe, just maybe one day all of this will be in the past, is all I need for hope.
Copyright © 2010 Allergykidmom. All rights reserved

Food Allergy Appointment #2

How many people have had to sit and watch their child get their blood drawn over and over again? Well, because of my daughter's food allergies, from time to time I have to go through this process. To think that for the rest of her life she may have to succumb to this just to see if her RAST numbers have changed is daunting for me.

I first had her tested when she was around 3 or 4 years old. The results came out showing she had several nut, pet, and outdoor allergies. What her allergist didn't explain to me was that we had to come back every so many years to keep getting tested. I found this out through the many people I follow on Twitter (thank you fellow twitterers). They were discussing how they were taking their children back in to get tested. So I decided to set up an appointment and talk to my daughter's allergist.

After viewing her old test results, her allergiest came to the conclusion that her numbers weren't as high as I assumed they were. Her allergist then said that she may actually outgrow them. I previously read, once you have a peanut allergy, you have it for life. I thought this was how her life was going to be forever. Knowing that she could actually outgrow them makes me believe that she has a chance to have a "normal" life after all.

Now began our RAST number conversation. First and foremost, a RAST (radioallergosorbent test) test is a blood test that measures the level of allergen-specific IgE (immunoglobulin E) in your blood. She explained to me if your RAST numbers are very high (level 5 and above) then chances are you will not outgrow them. Or more importantly if you are an adult and get diagnosed with a peanut allergy, you will not outgrow it either. Seeing how her peanut RAST number is a 12.80 (level 3), her allergist wants to test her again and see if they have gone down. If her RAST number for peanut is 5.00 or below, her allergist would like to conduct a food challenge.

Right now I am just waiting for the blood test results to come back. And once they do, it will determine where we will go from here.

 

Copyright © 2010 Allergykidmom. All rights reserved

Valentine's Day Candy Denial

Valentine's Day is usually a fun time for most people, but for a parent of a child who can only eat certain foods, it is not.

On Friday, my daughter had an impromptu Valentine's Day party at her school. Normally this is fine, but when I went to drop her off, I saw a ton of candy filled bags and cupcakes. Her teacher proceeded to come over and asked me if she was allowed to have anything. I let her know that she couldn't, but she could bring everything home. Well, to my amazement, when I picked her up she was sucking on a lollipop. I know most of you are thinking, what is wrong with a lollipop? For my daughter, a small lollipop could set off a chain of reactions. One reason being, she is allergic to blue dye.

My weekend was spent going through bags of candy (not only from the party on Friday, but also from a birthday party on Sunday). First, I had to take out all the chocolate candy for nut reasons. Then the hard candy was divided up depending on color (blue or purple (we all know red and blue make purple)). And last but not least, anything that had blue dye #1 in it but wasn't the color blue, I also put aside. If you are thinking that she wasn't left with a lot of candy choices, you are right.

As sad as it is, she is use to being denied certain foods. It doesn't get any easier explaining to her that she can't eat what the other kids are eating because of her food allergies. She thinks that all we have to do is stick her with her epipen and she will be all right. I have explained to her that if it comes to that point, it would be a serious matter. Maybe it will get easier for her and maybe it won't. One thing I do know is that I am the one who has to watch what goes into her mouth and until she is able to use discretion, I will be the candy separator.

Copyright © 2010 Allergykidmom. All rights reserved

Why Can't Schools Care More?

I went to my daughter's school sometime ago to talk to the nurse about her safety there. Would you belive it, she was not in. The school nurse is only there one day out of the week. How am I to feel safe if the "school nurse" is only there one day out of the week?

This is a big irritation of mine. I would like to drop her off to school and feel as though she is in good hands. I can't feel that way knowing that the nurse can only attend to her one day out of the week. What if something were to happen on one of the days that she isn't there? Who would take care of her? Much to my chagrin, it would be one of the staff members in the office. Part of me doesn't agree with this. And the reason being is because I don't believe they have taken the class that the nurse needed to correctly administer the epipen to my child.

Another surprising thing is that the nurse had never taken the class before. There are other kids that attend the school that apparently have food allergies also, but she wasn't told to take the class until I started nosing around. Whether there are kids on the campus with food allergies or not, I believe she should be trained in this matter. Call me crazy, but you are a school nurse, right? I know most people are probably saying, 'Why take a class if it is not needed?' Well, so you will be well prepared when it comes about.

When I enrolled her into preschool it didn't matter as much because she didn't eat lunch there. She also had a wonderful teacher who asked me on the mornings of parties if certain foods were appropriate. And when she graduated to kindergarten it was okay because that teacher was awesome with her also. She would call me up at home and ask me if certain foods were okay. She would also keep frozen popsicles for her if parents showed up with cupcakes unannounced.

This brings us to her first grade teacher. Bless her heart, she is a beautiful woman. But I don't think she understands food allergies. The first day of class I explained to her that my daughter had food allergies. She looked very puzzled, so I decided to make up an example for her. She looked at me and said, 'If I have a mango at my desk, what should I do?' Well, if you want my honest opinion, put it back in your lunch. No matter what I said to her she just didn't get it.

Last week they had an impromptu party and had cookies that came from a bakery. It shocked me when my daughter told me that she had some cookies. Unfortunately my daughter is starting to want to eat what the other kids are eating and I am having to hound her a little more than I use to. So when she told me about the cookies I confronted the teacher. All she said was, 'Okay.' Can you believe that is all I got out of her. I didn't get a sorry or I will ask her the next time. I just got an 'okay'. And to make matters worse, she let my daughter take home some food that she was allergic to. Why would you do that? I know it was wrapped up in a napkin, but come on!

Oh, it gets even better. They will not allow her to eat cafeteria food either. They say that it doesn't state where the food is made and they don't want to take any chances. I even asked to look at the packaging so that I can determine if it is safe, but they will not allow it. In a way it is good. I don't really want her eating cafeteria food anyway. But sometimes I don't feel like making her a lunch and wouldn't mind her eating a cheese sandwich or a bean burrito from the school. And when it comes to kids sharing food at lunch, all they do is tell them not to share food because some kids have food allergies. As you can see, this school does not have food allergy free tables.

I'll be honest, I am not happy with my daughter's school or the administration members either. It is hard to drop your child off and wonder if you are going to get a phone call stating that they either gave them an epipen or called an ambulance and they are on their way to the nearest hospital.

Food Allergies and Birthday Parties

Kids with food allergies and birthday parties don’t always go hand in hand, in my opinion. Most parents who have children with no food allergies don’t worry when they plan the menu. They tend to think about what their child likes to eat and serves it. Nothing against it, it is totally understandable, but it does cause some problems for parents with kids who can’t eat everything.

 My daughter was recently invited to a birthday party. Luckily they served cheese pizza and not regular food. I have noticed, in the past, some parents would get a little offended when I asked them where their food came from and how it was prepared. I would have to explain that she has food allergies and I have to be careful what she eats. Some understood, yet others weren’t so understand. So I try to plan now and bring food for my daughter depending on what they are serving. Even if she has her own food, I still have to watch how the other kids are eating around her. She is still young and doesn’t know how to keep an eye out for flying food or shared napkins. Or as nasty as this may sound, kids who talk with food in their mouths and spit it across the table.

Now, when it comes to the birthday cake and ice cream….. I have to say, I really feel for kids who are allergic to milk and eggs. That has to be hard to deal with. I can get around the ice cream sometimes with my daughter, but most of the time I avoid it. The cake, she can never have. Most bakeries have the warning on the boxes regarding nuts and tree nuts and even if it is homemade it could come from box cake mix, which we cannot do. I have asked my daughter if she wanted me to bring her a cupcake or slice of cake to eat when they sit down to have theirs, but she refuses. When she was younger it was easier to deal with, but as she gets older she seems to want to eat exactly what the other kids are eating.

 So, birthday parties for me aren’t always fun to attend. I spend most of my time looking to see if she is okay. Sometimes when kids carry food around or spill it near her, I have to make sure she doesn’t get any on her. I know I probably sound overbearing, but I have never had to use her epi pen and I plan on never having to use it. If that means watching her like I hawk, then that is what I will have to do.

 As I dropped my daughter off to school today a parent handed me an envelope. I opened it up. Guess what, another birthday party. Here we go again…..